The impact of chronic kidney disease: experiences of patients and relatives from the extreme north of Brazil

Maria Virgínia Filgueiras de Assis Mello, Margareth Angelo


Objective. To identify the impact of chronic kidney disease on patients and their families.

Method. This is a qualitative study conducted by the theoretical and methodological reference of Symbolic Interactionism and Narrative Research. The scenario of the study was the State of Amapá, in the extreme north of Brazil. Semi-structured interviews were conducted with 15 patients who experienced hemodialysis therapy and 16 family members.

Results. The thematic analysis of the narratives resulted in the identification of two themes: life before the disease and life invaded by the disease.

Conclusion. The diagnosis of chronic kidney disease and the need undergo hemodialysis emerged as a source of intense suffering, affecting the daily lives of the families as a whole and causing physical, psychological and social damages.

Descriptors: renal insufficiency, chronic; renal dialysis; qualitative research.


How to cite this article: Mello MVFA, Angelo M. The impact of chronic kidney disease: experiences of patients and relatives from the extreme North of Brazil. Invest. Educ. Enferm. 2018; 36(2):e02.

Full Text:

PDF ENGLISH Portuguese


(1) Nugent RA, Fathima SF, Feigl AB, Chyung D. The Burden of Chronic Kidney Disease on Developing Nations: A 21st Century Challenge in Global Health. Nephron. Clin. Pract. 2011; 118:c269–c277.

(2) Bastos MG, Kirsztajn GM. Chronic kidney disease: importance of early diagnosis, immediate referral and structured interdisciplinary approach to improve outcomes in patients not yet on dialysis. J. Braz. Nefrol. 2011; 33(1):93-108.

(3) Retting RA. The social contract and treatment of permanent renal failure. J. Am. Med. Assoc. 1996; 274:1123-26.

(4) Jha V, Garcia-Garcia G, Iseki K, Li Z, Naicker S, Plattner B, et al. Chronic kidney disease: global dimension and perspectives. Lancet. 2013; 382:260-72

(5) Barreto MS, Marcon SS. Doença Renal Crônica: vivências e expectativas do cuidador. Rev. Enferm. UERJ. 2012; 20(3):374-9.

(6) Makaroff KS, Sheilds L, Molzahn A. Symbolic representations of living with chronic kidney disease. Nephrol. Nurs. J. 2013; 40(6):517-26.

(7) Bayhakki, Hatthakit U. Lived Experiences of Patients On Hemodialysis: A Meta-Synthesis. Nephrol. Nurs. J. 2012; 39(4):295-305.

(8) A, Henning P, Wong G, McTaggart S, Mackie F, Carroll R. et al. Experiences and Perspectives of Adolescents and Young Adults With Advanced CKD. Am. J. Kidney Dis. 2013; 61(3):375-84.

(9) Al-Ghabeesh S, Suleiman K. The Lived Experience of Patientes with End Stage Renal Disease on Hemodialysis: A Phenomelogical Study. Int. J. Med. Med. Sci. 2014; 47(1):1423-29.

(10) Denzin NK, Lincoln YS. Introduction: The discipline and practice of qualitative research. In: Denzin NK, Lincoln YS, Editors. The Sage handbook of qualitative research. 4th ed. Thousand Oaks, CA: Sage; 2011; P.1-19.

(11) Blumer H. Simbolic interactionism: perspective and method. Berkeley: University of California; 1969.

(12) Clandinin DJ, Connelly FM. Narrative inquiry: experience and story in qualitative research. San Francisco: Jossey- Bass; 2000.

(13) Instituto Brasileiro de Geografía e Estatística. Estimativa de população; 2017 [cited 3 Oct 2017]. Available from:

(14) Wright LM, Leahey M. Enfermeiras e famílias: um guia para a avaliação e intervenção na família. São Paulo, 5th ed. Roca; 2012.

(15) Leonidas C, Santos MA. Relações familiares nos transtornos alimentares: o Genograma como instrumento de investigação. Cien. Saude Colet. 2015; 20(5):1435-47.

(16) Braun V, Clarke V. Using thematic analysis in psychology. Qual. Res. Psychol. 2006; 3(2):77-101.

(17) Morin EM. Os sentidos do trabalho. RAE - Revista de Administração de Empresas. 2001; 41(3):8-19.

(18) Lourenço CDS, Ferreira PA, Brito MJ. O significado do trabalho para uma executiva: a dicotomia prazer e sofrimento. Organizações em contexto. 2013; 9(17):247-79.

(19) Rotenberg L, Griep RH, Fischer FM, Fonseca MJ, Landsbergis P. Working at night and work ability among nursing personnel: when precarious employment makes the difference. Int. Arch. Occup. Environ. Health. 2009; 82(7):877-85.

(20) Starfield B. Atenção primária: equilíbrio entre necessidades de saúde, serviços e tecnologia. Brasília: UNESCO; 2002.

(21) Walsh F. Fortalecendo a resiliência familiar. São Paulo: Roca, 2005.

(22) Rudnicki, T. Doença renal crônica: vivência do paciente em tratamento de hemodiálise. Contextos Clínic. 2014; 7(1): 105-16.

(23) Bertolin DC, Pace AE, Kusumota L, Haas V. An association between forms of coping and the socio-demographic variables of people on chronic hemodialysis. Rev. Esc. Enferm. USP. 2011; 45(5):1070-76.

(24) Alnazly EK. Burden and coping strategies among Jordanian caregivers of patients undergoing hemodialysis. Hemodial. Int. 2016; 20:84-93.

(25) Velázquez PY, Espín AM. Repercusión psicosocial y carga en el cuidador informal de personas con insuficiencia renal crónica terminal. Rev. Cubana Salud Pública. 2014; 40(1):3-17.

DOI: Abstract : 1099 PDF : 1632 ENGLISH : 58 Portuguese : 182

Article Metrics

Metrics Loading ...

Metrics powered by PLOS ALM

Esta publicación hace parte del Sistema de Revistas de la Universidad de Antioquia
¿Quieres aprender a usar el Open Journal system? Ingresa al Curso virtual
Este sistema es administrado por el Programa Integración de Tecnologías a la Docencia
Universidad de Antioquia
Powered by Public Knowledge Project